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Vice President, State Policy

Company: The ALS Association
Location: Arlington
Posted on: May 9, 2022

Job Description:


Reporting to the Senior Vice President of Advocacy, the Vice President of State Policy is charged with engaging lawmakers and regulators at the state level to make ALS a livable disease by 2030. The Vice President of State Policy works with and leads Association staff, volunteers, state officials, other advocacy organizations, and the ALS community at large to accomplish these goals with urgency, integrity, and compassion.

DUTIES AND RESPONSIBILITIES: Core duties and responsibilities include the following. Other duties may be assigned.

  • In collaboration with the Senior Vice President of Advocacy and other internal and external Association stakeholders, develop and implement a comprehensive state policy and advocacy agenda that has a symbiotic relationship with the organization's federal agenda.
  • Work directly with state legislatures and state executive branch agencies. This includes working with key healthcare policymakers, including members of legislative committees with jurisdiction over healthcare, the Departments of Insurance, and other state agencies and executive departments tasked with overseeing state health care programs.
  • Educate Managing Directors on all state policy efforts. This includes developing grassroots action plans that strategically engage advocates and volunteers to achieve desired policy outcomes. Provide support as needed.
  • Partner with other mission areas (research and care services) and other Association teams, including development and communications, to develop and execute the Association's state advocacy goals.
  • Represent the Association at conferences such as the National Association of Insurance Commissioners (NAIC), the National Council of Insurance Legislators (NCOIL), and the National Conference of State Legislators (NCSL).
  • Assess each state's outside counsel and lobbying needs and manage these resources appropriately.
  • Cultivate the trust and confidence of staff, trustees, volunteers, elected officials and staff, and other members of the ALS community.
  • Promote effective and efficient communication of Advocacy information to the entire ALS community and the media in collaboration with Communications.
  • Convey a professional image that reflects favorably on The ALS Association.

    • Develop effective strategies and priorities that help make ALS livable, and reflect the Trustees' concerns, people with ALS, and the broader ALS community.
    • Successfully manage state advocacy goals and activities to meet or exceed annual objectives.
    • Measure, assess, and improve the state advocacy outcomes achieved.
    • Effectively manage staff, including regular performance reviews and plans for improvement when necessary.

      • Directly supervises employees within a growing Advocacy department.
      • Carries out supervisory responsibilities in accordance with the organization's policies and applicable laws.
      • Responsibilities include interviewing, hiring, and training employees; planning, assigning, and directing work; appraising performance; rewarding and disciplining employees; addressing complaints and resolving problems.

        • Bachelor's Degree (BA) from a four-year college or university and seven to ten years of related experience and/or training in a similar role or equivalent education and experience.
        • Advocacy and state health policy experience required, with specific knowledge of ALS and health insurance issues preferred.
        • Proficiency in Microsoft Outlook, Word, Excel, and PowerPoint and video conferencing platforms required.
        • Excellent online research skills.
        • Five years of strong supervisory experience.
        • Ability to handle confidential matters with a high level of integrity.
        • Ability to travel up to 30% and work weekends or evenings on Association business as required.

          All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability or protected veteran status.

          The ALS Association endeavors to make accessible to any and all users. If you would like to contact us regarding the accessibility of our website or need assistance completing the application process, please email This contact information is for accommodation requests only and cannot be used to inquire about the status of applications.

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Keywords: The ALS Association, Arlington , Vice President, State Policy, Executive , Arlington, Virginia

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