Vice President, State Policy
Company: The ALS Association
Posted on: May 9, 2022
Reporting to the Senior Vice President of Advocacy, the Vice
President of State Policy is charged with engaging lawmakers and
regulators at the state level to make ALS a livable disease by
2030. The Vice President of State Policy works with and leads
Association staff, volunteers, state officials, other advocacy
organizations, and the ALS community at large to accomplish these
goals with urgency, integrity, and compassion.
DUTIES AND RESPONSIBILITIES: Core duties and responsibilities
include the following. Other duties may be assigned.
- In collaboration with the Senior Vice President of Advocacy and
other internal and external Association stakeholders, develop and
implement a comprehensive state policy and advocacy agenda that has
a symbiotic relationship with the organization's federal
- Work directly with state legislatures and state executive
branch agencies. This includes working with key healthcare
policymakers, including members of legislative committees with
jurisdiction over healthcare, the Departments of Insurance, and
other state agencies and executive departments tasked with
overseeing state health care programs.
- Educate Managing Directors on all state policy efforts. This
includes developing grassroots action plans that strategically
engage advocates and volunteers to achieve desired policy outcomes.
Provide support as needed.
- Partner with other mission areas (research and care services)
and other Association teams, including development and
communications, to develop and execute the Association's state
- Represent the Association at conferences such as the National
Association of Insurance Commissioners (NAIC), the National Council
of Insurance Legislators (NCOIL), and the National Conference of
State Legislators (NCSL).
- Assess each state's outside counsel and lobbying needs and
manage these resources appropriately.
- Cultivate the trust and confidence of staff, trustees,
volunteers, elected officials and staff, and other members of the
- Promote effective and efficient communication of Advocacy
information to the entire ALS community and the media in
collaboration with Communications.
- Convey a professional image that reflects favorably on The ALS
- Develop effective strategies and priorities that help make ALS
livable, and reflect the Trustees' concerns, people with ALS, and
the broader ALS community.
- Successfully manage state advocacy goals and activities to meet
or exceed annual objectives.
- Measure, assess, and improve the state advocacy outcomes
- Effectively manage staff, including regular performance reviews
and plans for improvement when necessary.
- Directly supervises employees within a growing Advocacy
- Carries out supervisory responsibilities in accordance with the
organization's policies and applicable laws.
- Responsibilities include interviewing, hiring, and training
employees; planning, assigning, and directing work; appraising
performance; rewarding and disciplining employees; addressing
complaints and resolving problems.
- Bachelor's Degree (BA) from a four-year college or university
and seven to ten years of related experience and/or training in a
similar role or equivalent education and experience.
- Advocacy and state health policy experience required, with
specific knowledge of ALS and health insurance issues
- Proficiency in Microsoft Outlook, Word, Excel, and PowerPoint
and video conferencing platforms required.
- Excellent online research skills.
- Five years of strong supervisory experience.
- Ability to handle confidential matters with a high level of
- Ability to travel up to 30% and work weekends or evenings on
Association business as required.
All qualified applicants will receive consideration for employment
without regard to race, color, religion, sex, sexual orientation,
gender identity, national origin, disability or protected veteran
The ALS Association endeavors to make www.als.org accessible to any
and all users. If you would like to contact us regarding the
accessibility of our website or need assistance completing the
application process, please email
firstname.lastname@example.org. This contact information is
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Keywords: The ALS Association, Arlington , Vice President, State Policy, Executive , Arlington, Virginia
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